LTFU
That's the name of my current group at the SCCA. I started with the "Rose" team for the first transplant. The "Yellow" team was next for transplant number two. Now I visit the "Long Term Follow Up" team or group. They deal with previous patients who have undergone transplants of any sort. It's still an impressive group of doctors and nurses. They rotate from LTFU to one of the other current treatment teams every few months.
My current health is fantastic but I probably have another GVHD symptom. My legs and feet are swollen and sore. They say it's probably due to the immune system fighting with my body. Treatment will likely be increasing the immune suppressant drugs or maybe taking a steroid again. Although I feel great, I don't want this to continue to the point where I become immobile. I enjoy popping wheelies in a wheelchair but I would rather not be forced to use one for the rest of my life.
Seattle is great this year. Unlike last year, with scorching temperatures and virtually no rain for the entire Summer, this year is more typical for Seattle. It's usually about 70 degrees with occasional rain. I like the rain and I enjoy Seattle but I'd rather go through a third transplant than drive in this traffic every day.
For now I'm just waiting to hear from the doctor. Maybe I'll walk to one of the four Starbucks that are all within two blocks from my hotel.
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