I guess it's not called "chronic" Graft vs Host Disease for nothing. Fifteen months after the big transplant and it's still showing itself with mysterious symptoms. This was a redo of the dozens of symptoms that used to happen at least twice per week. I developed a pretty bad body rash about three weeks ago. It looked like measles but didn't spread to the face, thank goodness.
First it was thought of as a drug reaction. After a couple weeks off of the drug without getting better a biopsy showed that it's GVHD again. The good news is just knowing. Now I'm taking more steroids than I've ever taken and the red dots are jumping off of my skin. I'm embarrassed to check but there is probably a trail of little red dots everywhere I go.
The side benefit is the energy picked up from the steroids. It's like a constant flow of caffeine. I can stay alert all day and the ultimate test was a staff meeting this afternoon. I stayed awake for the entire meeting!
No comments:
Post a Comment