Tuesday, November 24, 2015

Misery

I'm not an authority on pain. I don't have vast experience of suffering. So many people are experiencing misery beyond my ability to comprehend. I just woke and cannot sleep due to some flu like symptoms and felt the urge to write down my thoughts with my phone.  Even though my level of suffering pales compared to so many around me I feel like I stood at the edge of the bottomless pit of misery and looked into the blackness.  It's not just death. It's complete loss of hope along with the constant agony of pain and symptoms too numerous to mention.

My glimpse at true misery occurred recently as my condition passed an entire year of treatment. The constant bombardment of sickness for so many months feels like weights pulling me toward that pit.

To be clear, I am not in constant agony though I've tasted it. I haven't given up hope though at times I've wondered if that would be easier. I looked into the pit without falling in. I've had the deepest heartfelt sympathy for the poor souls who have fallen. They're all around me. 

It's impossible to be here for so many months without feeling their pain. For my part at the clinic, the least I can do is offer hope. I use humor to try to make them smile. I tell transplant patients that I'm doing incredibly well which gives them hope for a similar outcome.  I do my best to care and assist when needed. Some people just need to have their pain acknowledged by another person.  I'm not a saint for helping others at the clinic. It would be impossible for anyone in my condition to ignore them and I'm not alone.  Encouragement and kindness are shared from many fellow cancer patients. 

The dominant symbol of encouragement comes from the clinic itself. Every day, hundreds of us flock to the clinic, knowing the drugs will make us more sick. We flock even though they take away our immune system and cause added misery. We flock because with each awful pill or infusion or radiation comes a glimmer of hope. Even in cases where that glimmer is faint, it's everything for some. It's their only chance at climbing out of that pit. The faint glimmer becomes a bright beacon of hope. The hope is not just for survival but for the dream of just feeling normal again. 

I'll read this tomorrow and probably delete it. Writing on a phone while heavily medicated with a headache in middle of the night will probably embarrass a clear minded, daytime self. I need to sleep. 


7 comments:

  1. This comment has been removed by the author.

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  2. From someone on the outside looking in, it's difficult to know how to respond to these words. That said, please don't delete this, Mike. We need to know this, if only for your words about acknowledging the pain that others are experiencing.

    Thank you for letting us share at least a small part of your journey, Mike. You're missed here at home.

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  3. Thanks Brian. I won't delete it then. Hopefully people will realize that I was on a narcotic pain killer at the time. I was having vivid dreams, then suddenly woke up with it already written in my mind.

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  4. Tsunami of love heading your way. Don't ever delete anything.

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  5. Symphonic band looks forward to your return. Keep pushing forward.

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  6. Hey Mike,

    I must apologize for being neglect in maintaining contact with you and keeping up with your blog. Got caught up in the 12 hours work days surrounding the school play and am only now kinda getting back on top of things after wrapping up the production.

    What you have been sharing is is totally meaningful and insightful to me. Your reflections are so human and honest, I feel a little better kind of going through the experience some with you, it makes me feel like I am DOING something, when there really is little I can do, other than to share your experiences as you write of them. At least that is something. At least with those experiences in mind I can say in all honesty, "hang in there" we are here behind you as best we can be, eagerly awaiting your return and confident that you will be here with us again.

    May the holidays bring you some respite.

    Peace and love,

    Marty

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