My three month follow-up appointment in Seattle is coming up on June 6. It's really more than three months but it was the soonest they could schedule an appoint from last February. They sent my list of appointments yesterday. It will be a full day of tests, ending with an hour and a half discussion with doctors. The sad part is, there isn't a bone marrow aspiration. There won't be a test to see if the cancer is gone or has come back. I don't understand why but they typically don't do that test for an entire year after the transplant.
GVHD (Graft versus Host Disease) is their real concern right now. That's the disease from a new immune system fighting against a foreign body. It's very real and I've had many aggravating symptoms for months. It's their primary concern because it's a potential killer within the first year of a transplant.
So we have conflicting concerns. I wonder about the cancer, they worry about GVHD. My first question for them will be "Why can't we check both?"
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